I was prescribed Humira and I am scared because I read about serious side effects like tuberculosis and cancer.
My AS is not as severe now but I know it's only temporary and there is no cure I've lost all hope and I want to die.
Hello! These meds have dramatically improved the quality of life for many KA members. There are additional even more promising meds in both research and recently approved. Likewise, there are AS patients who fear the potential side effects of these meds therefore choose not to take them which is understandably a difficult decision. I think one needs to make a conscious decision that yes, you may be choosing QUALITY of life over QUANTITY of life and if you choose QUALITY--go at life with a gusto! Appreciate everything, and do as much as you can! This New Year make a list of all the things you want to do, places you want to see, and goals you want to reach. Refresh that list continually as you adjust to limitations AS may influence.
There's still plenty to do and see on earth even with limitations. Focus on getting your pain and inflammation under control by whatever combination of solutions others have used here (meds, diet, exercise, pain management, meditation, spirituality, etc.). Best wishes to you and make 2015 the year you tame the Ankylosaurus!
