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I am happy to hear that you got on with life. I am planning to do the same and determined to make most of my recovery by July 2019 when I plan to return to work in China. I love the food culture and weather there. Cost of living for me there is only 20% that of Canada too -- I can live like a king there. Right now I am looking out my window and wet snow is falling; I never wanted to see that again!! That is not something I like to walk on when there is ice on the ground.
Maintaining an active life-style during the thirteen month-long snow season in central Canada is very expensive. In comparison it was much easier to get daily exercise in central China due to the weather, infrastructure, and zoning. Most daily needs were within a short and comfortable walk. In many cities in North America you need a car! There were many free, outdoor gyms and community parks surrounded by a group of apartment buildings; they were more prevalent in older communities. The apartment complexes being built in the past two to three years make parking space for the private car a higher priority; so sad. China is becoming more affluent and more people can afford a car. They are in love with their cars like Americans were long ago (to Chinese it is a status symbol and a sign of proserousness -- some girls have the rule "no car, no date.") But with the necessity of autonomous vehicles due to population density and the environmental health crises that love can't last.
Communities and weather that a person can mostly walk in leads to better health late in life.
The Lyme Disease forum that I participate in can be very discouraging because so many people express anguish of treatment failure, political obstruction, ignorant family doctors, infectious disease doctors that say the disease does not exist, etc.
There is no denying how politics effects a doctor's willingness to treat a patient and also that there is no clearly defined treatment protocol for stealth infections -- an area greatly neglected by infectious disease doctors. But I also feel that I am getting a biased impression from the Lyme disease forums since it is where people vent when they are trapped in a situation that denies them treatment. Inability to get treatment is mostly out of lack of funds. Insurance companies put a lot of pressure on medical associations and the government (CDC/PHAC) to make Chronic Lyme Disease "not exist" and to lobby that long-term antibiotics does not work, and to insist that if unreliable testing is negative then the patient is really mentally ill. Canadian's have to pay out of their own pocket and leave the country to get antibiotic treatment in USA, Mexico, Germany, etc, or to experiment with poorly understood treatments like herbs, bioresonance, etc that the government will not support. Big Phrama is king and are the only ones with the funds to do the big studies to "prove" their effectiveness at poisoning society. That is a bit of an exaggeration. Big Phrama is doing some good and bad. The problem is how they put alternative ideas out of business and how the government will only accept a mode of research and approval that is becoming obsolete in the age of N=1 personalized medicine.
Starting almost two days ago I began a treatment protocol prescribed by my ND which includes:
Stevia and serrapeptaseas as biofilm busters.
A-Bart to kill bartonella an other pathogens.
Cat's Claw and Japanese Knotweed to kill pathogens in general -- but I was advised to substitute cat's claw with samento because the former contradicts possible autoimmune disease.
Milk thistle + other detoxification nutrients.
Liposomal glutathione (GSH) -- but a pharmacists tells me to save my money and get a pure powder form of GSH and use it sublingually to save money.
The ND and I agreed that we will give this a try until I see my MD again in mid-October. I saw the MD only once -- he's brand new for me -- and he did not like meeting someone with positive lab tests from Germany for Lyme disease, cat scratch fever, babesia and even mycoplasma pneumonia and active EBV. Doctor's simply do not want to treat Lyme disease and would rather diagnose a patient with seven other syndromes (arthritis, autoimmune diseases, fibromyalgia, IBS, migraines, sinusitis, MS, etc) than to address evasive stealth infections. However I am still open to the possibilty that some of my positives really are auto-immune problems that are cross reacting with the tests.
Here's a fellow Manitoban that shares my frustration.
My history with Lyme, Bartonella, Parasites and the Manitoba "Health Care" System.
Before coming to my Lyme awareness and testing I learned a lot from KickAs. The overlap in symptoms and management methods (LSD/NSD, gut healing, probiotics) between spondyloarpathies and Lyme disease keeps my head spinning. Better testing is needed for both, and more! But the similarities really should not be surprising given the recent research on the relationship between the gut and neuro-immune system. Most of us are convinced that miroorganism trigger AS and perhaps people with the genetics that predisposes them to spondyloparthies also are some of those that develop post treatment lyme syndrome.
On a related note, I must thank Dragon Slayer for this BBS. I have tried using other BBS's for Lyme disease and none come close to the feel and excellent organization KickAs provides.
HLA-B27 neg, vague AS symptoms in 20s and early 30s 1993:fibromyalgia (age 25) 2013.07:Reverse blockage in a SCUBA accident 2013.08:Scratched by a sick cat 2013.09:Strange sore throat then meningitis 2014:Chronic inflammation at the base of the skull 2014 to early 2015:excess NSAID use developed complete axial inflammation, included psoriasis NSD helped well and but was not perfect 2018.07: weak +'ve tests for borrelia, babesia, bartonella and mycoplasma pneumonia using Armin Lab, ANA=equivocal