They always say knowledge is power, and just knowing what is and isn't in your medical file is a huge help. It does mean that it you do see a new doc, you can take along the missing information or that added detail, or the updates that will help them interpret it better. I have a fibro sort of diagnosis at the moment, and it clearly doesn't fit, so at some point I want to lose it too. The best chance of that is to not see it as the final diagnosis, but a point of understanding along the way that has been superceded by various other findings (on examination, by your progression of clinical history, or by tests). When you get docs who just read one page of a big file and stick with that its hard, and thats where you have to point out what came later and how it developed. Good luck with it all.
