thanks ben!

will see if the new rheumy will write NOT FM.

the third rheumy did tell me to my face, "you do not have fibro" but would only write "does not have x number of tender points......", my impression is that he did not want to directly contradict rheumy #2. but maybe someone in another city who doesn't know rheumy #2 personally. plus rheumy #3 didn't dx me with anything. so maybe if someone is actually dx'ing me with something, will feel more confident in writing also what i don not have.

but i just love those terms like "discomfort" to describe our pain.

or "backache" to describe severe muscle spasms in the lower back and buttocks. i've had a "backache" before, and severe muscle spasms are not the same as sore muscles, which to me is what a backache is.

also, "myofascial pain syndrome", another one of my favorite catchall phrases. at least at my last appointment with my physiatrist, at least she had the decency to write to the GP and state that the amount of pain i had in my upper back was not consistent with "myofascial pain". turns out i had a rib subluxation compressing nerves. that would explain it. did turn out to be a simple explanation. just not something on the radar of the half dozen doctors and PTs trying to help me last year. another very important reason to try different specialties when no one seems able to help. everyone does seem so myopically focussed these days.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)