i do think you are correct: as soon as i got the fibro dx, it took another 15 months of trying very hard before another rheumy in town would even consider seeing me. i even called our local arthritis foundation office for help. even they told me that since i had fibro.......i tried to tell them i didn't, that a lot of other doctors had ruled it out along the way, but even the arthritis foundation told me that if a rheumy dx'ed me with it, i MUST have it, that the other doctors and i were wrong. but once i saw another rheumy finally, though he didn't dx me with anything, and wouldn't disagree with the other rheumy on paper writing "does not have fibro", did write "does not have the _ # of tenderpoints (that would indicate fibro) and did show me how gently a doctor is supposed to press to determine tenderpoints. then after that, could see another rheumy about 8 months later. his reports say enthesopathy, so slowly the records got better. maybe just seeing fibro staring me in the face is just a personal issue i have to get over. i also feel it does a disservice to those who have this equally debilitating disease of fibro.



sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)