thanks craig.

that's the thing i think. i have had better experiences with doctors who just listen to what i tell them, look at the data i share with them, etc.

my retired GP tried to be oh so helpful by writing letters and sending a packet of data to any doctors he had to refer me to. but looking at the letter, so many mistakes in the letter, and use of the word discomfort over pain really wasn't helping my cause. and the data he chose to send vs that he chose not to send, really wasn't the best.

but when i can put my own packet together, and share my history, that always works out better. and i tend to be very inclusive. even telling new doctors about the fibro dx, but explaining the rest of the story, to get a complete picture.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)