i think you may be right jay.

my current in town rheumy made so many mistakes on his first office report (back to my GP) so i corrected the report (things like changing "psychiatrist" to "physiatrist" or changing "not taking a proton pump inhibitor for her stomach" to "taking prilosec daily since 1993". big, factually incorrect stuff. i left the opinion stuff that i could not prove, as i figured it would just devolve into an argument.

but all of this has really opened my eyes to how important it is how we report things so the doctors can get it right. now when i go to doctors visits, i write down the things i want them to know, make a copy and have them put that into my file as well. think that is turning out to be a very helpful thing.

when i started this adventure, never occurred to me how much we'd have to take control of our medical treatment.


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)