thanks, that is helpful. even if things are done a bit differently here, think your post is full of good ideas. guess what i need to decide is how important this is. it is good that i've been getting better dx's along the way. the last rheumy said enthesopathy, the new one said spondyloarthropathy, so each dx, a bit better defined. really the only thing that was flat out wrong was the fibro. mostly its been just very cautious diagnosing, which i understand. no dx, or a very cautiously written dx is better than a mistake. mistakes tend to follow us and cause issues along the way. right after that quick fibro dx, that kept me from finding another rheumy for 15 months, try as i might. that's a long delay in the process of finding someone to help you when all your other doctors are telling you, "i can't help you, you need a rheumatologist." and you saying, "i understand, i'm trying!"

thanks, may inquire with my doctor about making these changes.

and i've been very good lately about getting all the paperwork from the various doctors, my file is pretty complete and finally organized. still need a bit more missing paperwork. then i've got documented proof. got to the point where i just felt i needed it. plus i was starting to lose track, not so much of what, but definitely of when, it's all started blurring together. so i got the notes as much for myself as anyone else.

thanks again,


sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)