Very interesting post Kat...however, I think you are not seeing the whole picture on this though, this has been like a tumor growing larger and larger these last few years and it's become so big that it can no longer be ignored, we've got a LITTLE group that is making BIG trouble here with 'troll type' behavior and it seems they have been quite successful in their endeavors, just take a look at our once calm and peaceful community, it's turned into a three-ringed circus, it's out of control and sinking fast...no I don't think us ASers want our own space nor do we feel superior or bias toward non-Asers...really,how could I POSSIBLY feel that way! Both of my sisters have MS, Mom had Lupus and my beautiful, precious daughters both have been DXed with Fibro and RA with suspected SLE, how could someone say that I am biased against non-ASers and have no compassion, symapthy and empathy for them!!! That's ABSURD!!!...AND what is this 'Pure AS-specific elitist' business'... The problem is not about what you've written, that's not the way this has all gone down...a few ASers have been targeted because they've continued to protest when someone puts false or misleading info out here about AS and they've been VERY nasty and rude when they are corrected about posting false information about AS...I don't profess to know about RA, because I don't have RA, so it would be offensive if I were to try and tell Wendy about HER pain and what she has to cope with while she's fighting HER disease, that would be ridiculous and incredibly rude of me as well as DISRESPECTFUL, as I have absolutely NO business telling anyone about THEIR disease...and two of the very same people you're defending here told me and I quote..."I'm glad you can drive 4 hours to see your rheumy, I WOULDN'T be able to do it!!!" ...as if to minimize the extent or impact my disease has on me and there have been several other rude and snide remarks...I certainly did not see you coming to my rescue or anyone elses during these last few years whilst these people have been rude, nasty and disrespectful to not only myself but others members of OUR community...if you're going to stand here and defend this, get the whole story, both sides, do your homework on this because you obviously have not seen all the little DIGS this very small group has put to all of us, they've attacked Wendy, Mig, Kevin, Molly, Trudi, myself, etc. since they arrived...and now you are telling us that we cannot speak for ourselves? I think you need to get your facts straight, this has not been unprovoked...this is EVERYONE'S KA...ALL OF US HAVE A RIGHT TO BE HERE, NO EXCEPTIONS BUT...IF SOMEONE HAS UsPa, THEY NEED TO TALK ABOUT THAT, DON'T TALK ABOUT AS, RA, MS...THINGS YOU KNOW NOTHING ABOUT!!! DON'T TRY TO TELL ME ABOUT MY DISEASE!! It's rude and offensive and I WILL say something EVERY time, I'm done with it... smile


Age 7- Kidney Necrosis
Age 11-Bursitis
Age 14-Costo
Age 17-Psoriasis
Age 32-Thoracic Outlet Syndrome
Age 33-Sacroilitis
Age 35-Interstitial Cystitis
Age 40-AS
Age 44-Fibro
Age 44-PsA
Age 45-MS
Age 46-Sjogrens
Age 46-Raynauds
Age 47-PF