Hi Wally,
I like the comprehensive survey idea. If kickas.org organizers could not conduct the survey, I can spend some time and organize a web site. As Deborah/John pointed out, we need to be very specific in the questions (to minimize any opinion/bias):
Just a thought for the format:
Most recent flare:
Lab Diagnosis: AS ( SI Fusion level, kp level,) IBD, gut inflammation, thyriod disorders, MS, ...
Duration: days ...
Pain locations: back neck shoulders hip knee foot ankle ...
Range of motion(?) Touch feet, Run, walk, neck movement, ....
ESR reading before: after: ...
CRP reading before: after: ..
TSR reading before: after:
Candida, yeast:
kp:
BP:
Cholestrol:
.....
. . .
Diet NSD LSD Atkins fasting xx days None
Medications: NSAIDS anti-TNF ....
Supplements: omega-3/6, ginger ....
Prior flare up:
Family history:
....
Rgds.,
Krishna