i did not know exactly what was in my medical records until i saw a referral from my new GP to the podiatrist today.

under patient history are various "problems" listed. one is that misdiagnosis of fibromylagia back in 2007 that has caused me so much trouble, the dx that was ruled out by a number of doctors prior, and a number since including 3 other rheumatologists now.

i'd really like to see it removed from my file once and for all.

does anyone know if this is even possible? to remove a mistake from the file? does it even matter anyway?

also, missing: hypothyroidism, blepharitis, all the various tendonitises and even the sacroiliitis for which i was treated, including bilateral cortisone injections into the SI. instead it says "backache"; i remember when one of the rheumatologists asked me about that i said, "no, more like a butt ache!" enthesopathy is on there though. i wonder who decides what goes on there and what is left off? wonder if this is a list the old GP put together? wonder if he just used some of the specialists' reports but not others? but how would he decide what to include and what to exclude? the whole thing is very odd to me.

any insight?

Last edited by Sue22; 09/25/10 12:50 AM.

sue

Spondyloarthropathy, HLAB27 negative
Humira (still methylprednisone for flares, just not as often. Aleve if needed, rarely.)
LDN/zanaflex/flector patches over SI/ice
vits C, D. probiotics. hyaluronic acid. CoQ, Mg, Ca, K.
chiro
walk, bike
no dairy (casein sensitivity), limited eggs, limited yeast (bread)