All I can share is that I don't allow myself to even look that deeply into the future. Call it escapist or whatever, but one can spend a lot of time worrying about the future and it's just a guessing game. As bad as this illness is, I haven't heard of anyone being in a nursing home at 45 or 50. Today I almost got hit by some idiot that would not give me an extra few seconds to cross the street. He was in a convertible and actually yelled at me. It was so close I could feel it whisk by. One of my coworkers was hit walking across this same street and that driver ran.
All I could think of was that if I were hit, what a waste it would have been because the insurance company and my employer wouldn't have had sufficient time to recoup the major expenses they paid for my unplanned brain surgery this year...another shocker that has even added to my philosophy of not thinking too far into the future. Now I'm still dealing with some problems that are scarier than the AS. I go with the saying that "life is what's passing you by as you're worrying about the future." Best wishes
This bunny Kicks AS !
