Okay. My family sometimes calls me Goddess.......actually they say I am....
THE GODDESS OF DREAMS COME TRUE.
I also have porphyria, formerly called the royal malady.
When I came to the internet I found tons and tons of Goddess sisters.
So I tried PORPHGODDESS........and low and behold, I was the only one of those!!! LOL So I use the same name on most of the sites I visit.
Recently, a 15 year old upstart with porphyria has decided that SHE is porphgoddess. So I told her we could share, but that she would have to tolerate my continued use of the name.........because I HAD IT FIRST~!!!!!!! Kids, gotta love 'um.
Love to all,
Ellie
